This website is dedicated to finding the genetic causes of familial exudative vitreoretinopathy (FEVR), along with better treatments and a cure. We are a group known as the American FEVR Research Consortium, organized by Kang Zhang , M.D., Ph.D. The purpose of this site is to investigate the genetic basis and clinical features of FEVR and to be a resource for patients and families who want to learn more about FEVR.

If you or someone you know has FEVR, you can help us to find better treatments and a cure. The purpose of this study is to find the genes causing FEVR allowing us to develop diagnostic criteria and treatment trials. When we know more about what causes FEVR, we will understand how to treat it and eventually find a cure. For more information please explore the website or contact:

Jenn Harmon, Genetic Research Coordinator
Moran Eye Center, University of Utah
65 Medical Drive
Room 6620-C
Salt Lake City , Utah 84112
Office: (801)585-1297
Toll Free: 1-800-824-2073 ext. 5-1297
Fax: (801)587-7686
Email: jennifer.harmon@hsc.utah.edu

She will provide you with information regarding your donation of a DNA sample. Please click on the How to Help link to learn more.